See the Film

Read the Book

 

You’ll laugh

You’ll cry

You’ll be inspired

Dr. Jenni Kleinman Berebitsky

Married two and half years, with a son 15 months old, and just finishing her residency as a naturopathic physician, Jenni Kleinman Berebitsky at age 33 was diagnosed with Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig’s disease).  In both Jenni’s book, ALS Saved My Life… until it didn’t and Grateful: The Jenni Berebitsky Story, the short documentary by Studio Nethercott, Jenni boldly shares what her life has been like with ALS.

Join the conversation and write a review on Amazon, Goodreads.com, and Facebook.

Book Reviews

“When Jenni says in this book that she had to get weak to find her strength, you better believe it. She’s one of the strongest people I have ever met, and this book of hers is mighty indeed. It will make you laugh, make you cry, and make you see the wonder and beauty of life. Read it now, and you’ll share some of Jenni’s strength.”

Jonathan Eig, New York Times best-selling author of Luckiest Man: The Life and Death of Lou Gehrig

Book Reviews

An honest and sobering glimpse into our daily struggles, of first being diagnosed, and then living with ALS. Jenni fights forward with grace, demonstrating that even under these difficult and painful circumstances; being present in the moment and making space for joy, humor, and love, opens the door for meaning, and gratitude in each and every day. Jenni you inspire me!

Nanci Ryder, Hollywood publicist, Co-founder of BWR Public Relations, diagnosed with ALS in 2014

This book is incredible. So raw and real — and inspiring. It puts life into perspective in a way you’ve probably never seen. It brings joy, anger, tears and laughter. I soaked in every single word.

Dana Benbow, Indianapolis Star features writer

Beautifully done – I would of given anything to have read a book like this to prepare ourselves . . . you are going to help and inspire so many people. AMAZING – THANK YOU both for coming into our lives. 

Kathy Shawver Maffei, close friend of Nanci Ryder for over 20 years

For a story of terminal illness, this book is overflowing with joy, optimism, good humor, and the love of life. Every page reminds us of how fragile our lives are, but also of Abraham Lincoln’s maxim that “most folks are about as happy as they make up their minds to be.” Jenni Berebitsky has made her mind up to be happy, and to be strong, and to lend her happiness and strength to the people around her—including those lucky enough to read this courageous memoir.

Ben H. Winters, Author of nine novels, including most recently the New York Times bestselling Underground Airlines

We are all just one bad diagnosis from stepping into the unknown territory that Jenni and her family have traveled. Like pioneers, they’ve blazed a trail for those who follow and they’ve done it with humor and pragmatism. 

Mary Doria Russell, Author of The Sparrow, A Thread of Grace, and Doc 

As Jenni says, “I’m always thinking,” which the reader sees clearly in her creativity and ways of connecting to the world around her. She is not helpless. At varying points in her disease progression, she opens her own naturopathic medical practice, officiates at her brother’s wedding, and participates in a sprint triathlon—twice. And throughout the entire story, Jenni shows us what a difference a wry sense of humor can make, especially when we are in our most vulnerable states. Jenni Berebitsky’s memoir has the reader reconsider the idea of what it means to be healthy and fully alive. She reminds us that “angels can appear out of nowhere,” and that if we are paying attention, and if we are always thinking, we just might see them.

 Melissa Keller, author of Crazy is Relative

Original watercolor painting by Hildy Eppel Hassman.

 

Purchase your own signed, numbered, double matted, artist quality 7″ x 11″ print of original book cover illustration.

Original watercolor painting by Hildy Eppel Hassman.

 

Purchase your own signed, numbered, double matted, artist quality 7″ x 11″ print of original book cover illustration.

“Once the film started I was immediately drawn to the subject itself (the mark of great production), and I don’t know that I’ve laughed and cried that much in any other quarter-hour of my life. Just absolutely remarkable.”

Ted Green, Producer and Director of Eva

Film Reviews

We are very proud that your filmmaking captured the tenacity and zest for living life to the fullest that Jenni Berebitsky has in spite of dealing with the hardships of ALS. Her courage is an example for all. As a neuroscientist, I understand, to a small extent, what a struggle Jenni is persevering through and using the blessed spiritual strength to remain strong for her young son and champion husband.

Robbie Singh, Research Scientist & Business Analysts

“Sometimes there are good souls that lend a little of their magic that make a moment, a creative idea, a challenging event into something so beautiful and indescribable that carries the power and spirit to profoundly transform many. Jenni Berebitsky is that angelic emissary, and Grateful – The Jenni Berebitsky Story is a powerful testimony of the good, the great, and the divine creative energy coming together to provide a testament of the possible against the backdrop of impossible; dazzling light amidst the immense odds; an amazing grace and courage that the Higher Spirit only entrusts to a few to inspire millions. This project is about this lesson and the one assigned to deliver it! We are being invited to experience the ultimate triumph of the human spirit!! Once the word gets out, this creative endeavor is likely to find resonance, not just arts audiences in Paris, Sydney, Toronto, or Mumbai Film Festivals, but across the human landscapes and unexplored regions of the human mind and spirit. Congratulations to eveyone involved in this project!!!”

KP Singh, Author, Writer, Public speaker

I came to support my friend Amy. And then I started to watch the movie. You made me Ugly Cry

— R. C. Thorne, Actor & Producer

What a truly special story this is… I am so moved after watching, as I was when reading Jenni’s book. The book and film together make such a powerful pair, set to inspire many!

— Marissa DeCuir, President, JKS Communications

Jenni is an inspiration and when she speaks about receiving and giving help it reminded me that as Jews that is the concept of mitzvot. Jenni’s courage and perspective on life and death have fed my heart and mind in ways that no high holiday sermon has done ever.

Ilene S. Uhlmann, Director of Chicago Jewish Film Festival

Was deeply moved by this inspiring woman, her family, her story. Yes, we are all indeed actively dying, it’s what people like Jenni are doing with their living that makes this world a better place. Wonderful, thought-provoking film! Looking forward to reading her book.

Autumn McEwen McAlpin, Writer, Producer, Director of Side Gig Productions

Despite its unabashed celebration of the human spirit, Grateful is, rather gratefully, not a film filled with greeting card sentiments. There’s a thread of realism throughout Grateful, a realism that seems to be enveloped by the immensely loving circle of family and friends who surround Berebitsky on a regular basis.

Richard Propes, The Independent Critic

It was no surprise to me that GRATEFUL received Audience Choice Award at our film festival… Having viewed the film many times privately and with large audiences, the sensitivity associated with the subject is first rate. I particularly like the way viewers can be overwhelmed with emotion and then — within the same scene — it has you laughing. Fabulous! I’m wishing you continued success and sincerely recommend GRATEFUL to everyone.

Craig Prater, President, Heartland International Film Fesitval

Press

“ALS Warrior Gives Secrets to Full Life After Terminal Prognosis”

Joe Blair, March 2019

“Sedona International Film Festival, Full Interview of ‘Grateful’ Director, Paul Nethercott, and Producer, Amy Pauszek”

March 2019

“‘Grateful’ Attracts Film Festival Invites”

Mark Ambrogi, February 2019

JCC Chicago Jewish Film Festival Announces 2019 Film Selections

February 2019

“Hope and Humor: Life with ALS”

Jenna Cohen, January 2019

“‘Heartland Film Festival features executive producer Pauszek’s documentary ‘Grateful'”

Renee Larr, October 2018

“Great Day with Patty Spitler”

October 2018

“‘Grateful’ wins Audience Choice award”

Current Publishing, August 2018

“A Look Behind the Lights, Camera and Action in Carmel”

Janelle Morrison, August 2018

“Doc Short ‘Grateful’ Set for World Premiere at Indy Shorts Film Fest”

Shari Rudavsky, Indianapolis Star, July 2018

“‘CHS graduate Park’s movie to make debut in Indy Shorts Festival”

Mark Ambrogi, July 2018

“Opening Night at the Indy Shorts Festival”

Dan Grossman, July 2018

“In hospice for two-plus years, Indy woman with ALS shares why she’s ‘Grateful’ in film”

Shari Rudavsky, Indianapolis Star, July 2018

“Indy Shorts Feature Highlight: Paul Nethercott and Amy Pauszek”

Dan Grossman, July 2018

“‘Grateful–The Jenni Berebitsky Story’–A Must See Film at Indy Shorts”

Terri Stacy, June 2018

“Best Friends Forever”

Susan Kasten, Beloit College Magazine, Winter 2017

“Indy woman in late stage of ALS: ‘I feel like a ragdoll'”

Dana Benbow, Special to Indy Star, December 2017

“Indy woman with ALS turns 40; she wasn’t supposed to”

Dana Hunsinger Benbow, Indy Star, May 2016

“Woman battling ALS to compete in Triathlon”

Dana Hunsinger Benbow, Indy Star, August 2014

“Defying her ALS diagnosis, woman competes in triathlon”

Video, Indy Star, May 2016

“ALS Women”

Helen Raines, Pink Magazine, September 2014

“Indy Woman with ALS: ‘By some miracle, I still have my speech'”

Dana Hunsinger Benbow, Indy Star, August 2013

Events

Jun 01

Greenwich International Film Festival – Documentary Shorts

June 1 @ 2:30 pm - 4:00 pm
|
$15
Bow Tie Criterion Cinemas
2 Railroad Ave
Greenwich CT
United States
Jun 02

Greenwich International Film Festival – Documentary Shorts

June 2 @ 11:00 am - 12:30 pm
|
$15
Bow Tie Criterion Cinemas
2 Railroad Ave
Greenwich CT
United States

Press

I Wrote a Diary; Now Anyone Can Read It?

Jenni Berebitsky, San Francisco Book Review, May 2019

City of South Bend Office of the Mayor – Proclamation: Jenni Berebitsky Day

Mayor Pete Buttigieg, South Bend, IN, May 16, 2019

Book Review – ALS Saved My Life

Angela Thompason, A Mama’s Corner of the World, May 2019

City of Indianapolis Office of the Mayor – Proclamation: Jenni Berebitsky Day

Mayor Joseph H. Hogsett, Indianapolis, IN, May 6, 2019

ALS Saved My Life…until it didn’t

Carol Jean Skinner, Live Laugh Love, May 2019

Indy Film Fest Features ‘Grateful’

Mark Ambrogi, Current, May 2019

ALS Warrior Gives Secrets to Full Life After Terminal Prognosis

Joe Blair, Health Thoroughfare, March 2019

Sedona International Film Festival, Full Interview of ‘Grateful’ Director, Paul Nethercott, and Producer, Amy Pauszek

March 2019

‘Grateful’ Attracts Film Festival Invites

Mark Ambrogi, Current, February 2019

JCC Chicago Jewish Film Festival Announces 2019 Film Selections

February 2019                                                                                                Grateful is highlighted as one of the films they’ll be showing that celebrates the strength and resilience, as well as a tribute to strong female protagonists whose experiences made a difference for their families and the world.

“Hope and Humor: Life with ALS”

Jenna Cohen, January 2019

“‘Heartland Film Festival features executive producer Pauszek’s documentary ‘Grateful'”

Renee Larr, October 2018

“Great Day with Patty Spitler”

October 2018

“‘Grateful’ wins Audience Choice award”

Current Publishing, August 2018

“A Look Behind the Lights, Camera and Action in Carmel”

Janelle Morrison, August 2018

“Doc Short ‘Grateful’ Set for World Premiere at Indy Shorts Film Fest”

Shari Rudavsky, Indianapolis Star, July 2018

“‘CHS graduate Park’s movie to make debut in Indy Shorts Festival”

Mark Ambrogi, July 2018

“Opening Night at the Indy Shorts Festival”

Dan Grossman, July 2018

“In hospice for two-plus years, Indy woman with ALS shares why she’s ‘Grateful’ in film”

Shari Rudavsky, Indianapolis Star, July 2018

“Indy Shorts Feature Highlight: Paul Nethercott and Amy Pauszek”

Dan Grossman, July 2018

“‘Grateful–The Jenni Berebitsky Story’–A Must See Film at Indy Shorts”

Terri Stacy, June 2018

“Best Friends Forever”

Susan Kasten, Beloit College Magazine, Winter 2017

“Indy woman in late stage of ALS: ‘I feel like a ragdoll'”

Dana Benbow, Special to Indy Star, December 2017

“Indy woman with ALS turns 40; she wasn’t supposed to”

Dana Hunsinger Benbow, Indy Star, May 2016

“Woman battling ALS to compete in Triathlon”

Dana Hunsinger Benbow, Indy Star, August 2014

“Defying her ALS diagnosis, woman competes in triathlon”

Video, Indy Star, May 2016

“ALS Women”

Helen Raines, Pink Magazine, September 2014

“Indy Woman with ALS: ‘By some miracle, I still have my speech'”

Dana Hunsinger Benbow, Indy Star, August 2013

Events

Jun 01

Greenwich International Film Festival – Documentary Shorts

June 1 @ 2:30 pm - 4:00 pm
|
$15
Bow Tie Criterion Cinemas
2 Railroad Ave
Greenwich CT
United States
Jun 02

Greenwich International Film Festival – Documentary Shorts

June 2 @ 11:00 am - 12:30 pm
|
$15
Bow Tie Criterion Cinemas
2 Railroad Ave
Greenwich CT
United States

Resources

By no means am I the only ALS patient, caregiver or medical professional with a story to tell and advice to give. Here is a list of websites worth exploring:

Websites

ALSuntangeld.com—reviews alternative and off label treatments (AOTs), with the goal of helping people with ALS make more informed decisions about them.

ALSA.org—The ALS Association helps patients and families cope with the day-to-day challenges of living with ALS by providing information, resources, and referrals to many sources, including a wide variety of community services. The ALS Association’s nation-wide network of chapters and other partners provides localized patient and family support in communities across the country.

ALS.net—ALS Therapy Development Institute—the world’s foremost drug discovery center focused solely on ALS (Amyotrophic Lateral Sclerosis).

IAmAls.orgA patient-led, patient centric community that reshapes public understanding of this disease, provides key resources to the community, and creates opportunities for patients to lead the fight against ALS and search for a cure.

PatientsLikeMe.comtrack and compare symptoms, progression, and protocol results with ALS patients around the world.

Every90minutes.org—Within in this site there is a technical guide with links to various things to help make life with ALS more productive.

ALSNewsToday.com—a news and information website about the disease.

YourALSGuide.comdesigned to provide clear information, connect you to resources, save you money, expand your support network, and generally make life with ALS a little easier.

PerformanceHealth.com—a great one-stop shop for devices and advice.

ALSFromBothSides.org—Written by a nurse who has been living with ALS for 30 years. She goes into great detail about some of the medical complications one may face as a result of ALS.

JasonClementalsFund.com—Jason’s Guide to Living with ALS, from a man’s perspective.

We’d love to hear from you.  Contact us at AlsSavedMylife@gmail.com.